Overcoming the obstacles: a collaborative approach to informed consent in prenatal genetic screening.
نویسنده
چکیده
“The social distance built into current ways of looking at the human body — the view of an objective scientist looking at another bodily object that is clearly separate and distinct — will be expanded to include a new type of social connectedness, where two human beings will be able to share their commonly felt experiences at their social membrane. In the new clinic, immunization from the emotional experiences of one’s fellow man will no longer be seen as either a vital necessity or a particularly virtuous aspect of scientific objectivity.” 1
منابع مشابه
Relationship of Informed Choice about Fetal Anomaly Screening with Worry and Anxiety in Pregnant Women
Background & aim: The purpose of prenatal screening programs during pregnancy is to empower the women to make an informed choice and reduce the uncertainty in decision making. However, the screening itself may cause worry and anxiety in the pregnant females. This study aimed to investigate the relationship of the informed choice in the pregnant females about fetal anomaly screening with worry a...
متن کاملI-40: Non Invasive Prenatal Genetic Diagnosis;Current Status and The Future
Discovery of cell free fetal DNA in 1997 has deeply changed the outlook of prenatal diagnosis approaches as most of the clinically established screening tests are not sensitive/specific enough while the current practical diagnostic tests are also invasive in their nature. The most common prenatal screening test is routinely practiced for the diagnosis of Down syndrome (DS) which includes a 10% ...
متن کاملPrenatal diagnostic tests of genetic disorders: review article
The purpose of prenatal diagnosis tests is insisting of diagnosis of neonatal disorders, preparing a range of informed choices and making couples at risk to be ready for having children with genetic disorders as well. The aim of this article is to investigate all of the tests in order to determine the best one which has the lowest risk and the highest sensitivity. Screening tests (maternal bloo...
متن کاملInformed consent or institutionalized eugenics? How the medical profession encourages abortion of fetuses with Down syndrome.
Many women are unprepared to make prenatal decisions about fetuses diagnosed with Down Syndrome because of societal pressures to have "normal" children, a negative view of persons with disabilities by many in society, a fear of legal liability by those in the medical community, the lack of genuine informed consent before undergoing genetic testing and abortion, and the failure of non-directive ...
متن کاملEthnic differences in informed decision-making about prenatal screening for Down's syndrome.
BACKGROUND The aim of this study was to assess ethnic variations in informed decision-making about prenatal screening for Down's syndrome and to examine the contribution of background and decision-making variables. METHODS Pregnant women of Dutch, Turkish and Surinamese origin were recruited between 2006 and 2008 from community midwifery or obstetrical practices in The Netherlands. Each woman...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید
ثبت ناماگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید
ورودعنوان ژورنال:
- Health law journal
دوره 14 شماره
صفحات -
تاریخ انتشار 2006